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Research following the terrorist attacks July 22nd 2011 has been especially challenging, due to the extreme nature of the events and the trauma for those involved; both directly as victims and indirectly as family, relatives and friends.
In this anthology, challenging questions and experiences related to studies conducted in the years since 2011 are presented and discussed. The aim of this publication is to draw attention to important questions related to research ethics, and to highlight principles for respect, justice and positive consequences. The book shows the relevance of conducting research in order to manage the consequences and understand underlying explanations for such extreme events, but also reveal that both study participation and exposure for research findings may be a burden for those involved.
Among the questions discussed are the following:
How can we assure that each individual is treated with necessary respect both before, during and after study participation
How can we assure an informed signed consent from the participants, given the situation they are facing
In which way is research important, and what level of risk is acceptable?
In addition, challenges related to sharing of sensitive research data and publication of results are also discussed.Even though the questions raised in this anthology stem from the extreme events of July 22nd, they are considered relevant in general for research in involving human subjects.
The anthology is edited by Vidar Enebakk, Helene Ingierd og Nils Olav Refsdal; with contributions from Grete Dyb, Kari Dyregrov, Ragnar Eikeland, Tor Einar Fagerland, Kristin Alve Glad, Lars Gule, Gertrud Sofie Hafstad, Annika Melinder and Anne Marita Milde.